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Dublin Live
Dublin Live
Health
Roisin Butler

Charity lights up Dublin buildings on Rare Disease Day

A charity lit up several buildings across Dublin last night to commemorate Rare Disease Day.

Louise O'Keeffe set up Rare Ireland after learning that her daughter had a disease called Neurofibromatosis Microdeletion Syndrome, which causes multiple tumours to grow in the body. Louise wanted to spare other families the loneliness she experienced following her daughter's diagnosis and was soon joined by other parents.

Rare Disease Day commemorations ended on Monday with buildings being lit up across the country. Trinity College, the Convention Centre and Swords Castle showcased the rare disease colours of pink, blue green and purple as a symbolic gesture.

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