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The Canberra Times
The Canberra Times
Megan Doherty

Canberra girl one of only 50 in world with rare syndrome

Belinda Hugh Karleen Minney Sophie
Ashley Clifford, 9, (left) with dad Hugh and mum Belinda and sister Sophie, 6. Picture by Karleen Minney

Ashley Clifford is a little girl battling a very rare, often isolating syndrome.

The nine-year-old from Florey is believed to be one of only two people in Australia and 50 in the world living with the rare genetic Beck-Fahrner syndrome.

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