A mother whose son died from a painful genetic skin condition has recalled his heartbreaking last moments as she pleads for more support for other families with children suffering from the same condition.
Maria Fynes, from Dublin, lost her oldest son Aaron in 2001 to a condition called epidermolysis bullosa (EB), which causes fragile, blistering skin.
Aaron was one of the first children in Ireland to be diagnosed with the the rare condition and sadly lost his battle with it at the age of just 16.
