A Dublin mum who lost her son to an excruciatingly painful genetic skin condition relives his final moments as she pleads for extra resources to help other families dealing with the disease.
Maria Fynes, 63, lost her eldest child Aaron to a condition called epidermolysis bullosa (EB). The boy was among the first children in Ireland diagnosed with the disease and lost his battle for life when he was just 16.
He died in 2001 but the mother-of-five recalls his agonising final moments with perfect clarity. “The last few days were terrible because his sight had worsened and the painkillers weren’t having the same effect,” she said.
