A baby who was diagnosed with cystic fibrosis at just 20 days old and has a rare one in two billion genotype – meaning “there’s probably more chance of him winning the lottery twice in one go” – needs funds for new treatment to help him live “close to a normal life”.
Jason Moore’s son Luca, a “happy, chatty” and “cheeky” 19-month-old, was diagnosed with cystic fibrosis (CF) – an inherited condition that causes sticky mucus to build up in the lungs and digestive system – at nearly three weeks old after a blood screening.
