A little boy was given a diagnosis 20 times rarer than Down's Syndrome after his parents became concerned when he would stare into space and get chest infections. Adam Ward and wife Rebecca welcomed Max in March 2021, their second child.
But, after a few weeks, Max started to routinely get chest infections. His mum and and dad also noticed that he would stare into space, rather than at them.
Their concerns led them to be "constantly" going to and from hospital. Then, after multiple tests and different potential diagnoses, Adam and Rebecca were told that Max had one of the rarest medical conditions in the world.
