A five-year-old who died in tragic circumstances will be remembered tomorrow (Sunday) at an Easter fair. Sam Liew died after the sudden onset of an epilepsy syndrome so rare it affects just one in a million people.
LancsLive reported the event is being organised by Sam's aunt Rhiannon Jones, the former headteacher of Kirkham and Wesham Primary School, in Nelson Street, Kirkham, near Preston. Held at Kirkham Community Centre, in Mill Street, from 1pm to 3pm, the fair will include cake and craft stalls as well as face painting and a raffle and all proceeds will go towards creating activity packs for children and distraction packs for teenagers being treated at Blackpool Victoria Hospital.
Sam died after developing febrile infection-related epilepsy syndrome (FIRES), which is believed to be an exceptionally rare reaction to a common virus such as a cold or flu. In was in March last year that he was rushed to hospital after experiencing the first of a series of increasingly debilitating and ultimately catastrophic fits.
