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The Independent UK
The Independent UK
Eleanor Fleming

Boy diagnosed with SMA after first symptoms dismissed as ‘totally normal’

A mother whose son has the same rare neuromuscular condition as singer Jesy Nelson’s twins has said she wants her to know, “it’s going to be OK”.

Sophie and Aden Cooke’s son Sid, now four, was diagnosed with spinal muscular atrophy type 1 (SMA1) at four months old in August 2021 after Sophie noticed movement, swallowing and breathing issues.

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