A seven-year-old boy complained of a sore stomach before a bizarre new symptom gave him just a five percent chance of survival.
Tyler Lynch's aching belly prompted a rare cancer diagnosis which limited his life chances and left his family “heartbroken”.
He started complaining of stomach pains in May 2020, but months later he woke with a limp and a sore leg.
The new symptoms prompted his parents Daniel and Maria to take him to Manchester Children’s Hospital.
Manchester Evening News reports his family were told he was suffering from 'irritable hip'
But the following day, his eye began to swell and his parents knew it was something more serious.
Daniel, 34, said: “He woke up and it looked like his left eye started to close.
“Doctors looked at him again and got him to walk. They asked how long he had been walking like that.
“A blood test found inflammation and then they did an MRI scan and we were told he had a tumour in his stomach and that it was cancer – it only got worse from there.”
Tyler, from Sale, Greater Manchester, was diagnosed with Stage 4 Neuroblastoma, a rare cancer that is almost always found in children.
It develops from the cells left behind from a baby’s development in the womb
Neuroblastoma affects around 100 children each year in the UK, about six per cent of the total number of childhood cancer diagnoses.
Tyler was placed on an intensive chemotherapy plan for 12 weeks before having a stem cell harvest and two tumours and five lymph nodes removed.
Surgery went well and Tyler, now aged seven, recovered quickly.
He then had another round of aggressive chemotherapy which led to an extremely low immune system, meaning he had to stay in an isolated room for six weeks.
The treatment meant Tyler's weight dropped substantially and he developed painful sores in his mouth, leaving him unable to swallow his own saliva.
After having his stem cells returned to his body, it was hoped the cancer had been destroyed. But six months later, Tyler began to feel pain in his knee.
Daniel added: “It wasn’t a lot of pain and wasn’t that noticeable for him.
“They did an ultrasound and they thought there was something in his stomach but that it was scarring from surgery.
“They didn’t investigate it any further from that point even though he was showing symptoms of a potential relapse.
"With the chemotherapy he had, it can cause bone pain realistically, but three months down the line he was still having pains.”
An MRI scan showed Tyler’s tumour had returned and doctors were unable to surgically remove it because it sits on a main blood vessel, making it too dangerous to operate.
His family are now desperately looking for more treatment but sadly the youngster’s chances of survival are very low.
“He has a five per cent chance of survival.
"They had to get five per cent from somewhere. So why can’t he be part of the five per cent?"
"I’m not sure what was harder – hearing the relapse or the first diagnosis. The first time round it was just heartbreaking to hear to be honest."
His parents want more research into children's cancer and are unsure of what will happen with his condition.
“At the minute everyone keeps saying, ‘I don’t know how you do it’. It’s a bit of a disillusion because what we know and what we see with Tyler are very different things.
“We don’t know which way it’s going to go. You have these days where things are quiet and you break down, but we don’t do that in front of him.”
A fundraiser has been set up to help Tyler, Daniel, Maria and his two sisters create unforgettable memories and experiences.
