A Belfast child who has been the brave face and soul of a law changing campaign, is five years on the transplant list today.
Little Dáithí Mac Gabhann, has been waiting for the gift of life through a heart transplant since he was a baby after being born with Hypoplastic Left Heart Syndrome.
Speaking to Belfast Live, Dáithí's father Mairtin said while the last number of years have had their highs and lows, they are spending Thursday feeling grateful for the journey they have had.