A family from Wales have finally discovered what led to their baby losing use of her muscles. Dani-Rae Brown’s condition became so bad that as she reached one year old she couldn’t sit up, had lost use of both of her legs, and was slowly deteriorating in front of their eyes.
Dani-Rae’s father Charlie said his “clever and lively” daughter suddenly began losing the use of her legs in April this year. He remembers vividly how partner Tyler rang him out of the blue while he was at work to tell him the shocking news about their baby.
“We’d noticed reduced movement in her legs in the days before, but it still came as a huge shock,” Charlie, who lives with Tyler and Dani-Rae at their home in Llanhilleth, Abertillery, recalled. “We went straight to the Grange Hospital in Cwmbran to get various blood tests done. She had lots of scans too but nothing could be found.”
