The parents of a little girl with months to live have described their horror after learning her ultra rare condition was caused by a gene defect they both carry.
Steve Wright, 31, and Beth Randall, 27, had enjoyed a straight forward pregnancy and birth when they welcomed their first baby, Olivia, into the world in February 2021.
But the couple from Hartley Wintney, Hampshire, knew something wasn't right when Olivia seemed to go off her food at six weeks, and started losing weight.
