The Rare Disease India Foundation has appealed to Union health minister Mansukh Mandaviya to address the gaps in providing life-saving treatment to those requiring it.
In a letter to Mr. Mandaviya, the Foundation has pointed out that on February 28, which is observed as Rare Disease Day the umbrella scheme of Rashtriya Arogya Nidhi (RAN) should be made available to all Group 3(a) patients with treatable conditions.
RDIF’s co-founder-director Saurabh Singh said the Union ministry currently provides under the scheme a one-time grant of Rs. 20 lakh to Group 1 patients. However, in the past several times the ministry had extended support to Group 3 (a) patients as well.
