
I recently had the pleasure of interviewing Benjamin Ree, director of The Remarkable Life of Ibelin, about his project—which follows the well-documented life of Mats ‘Ibelin’ Steen, a World of Warcraft player with Duchenne muscular dystrophy (DMD).
DMD is one of many muscular dystrophy conditions, and is considered to be one of the most severe, with a life expectancy of 20 to 30 years. Steen died in 2014, and while his parents were worried he'd led an isolated and lonely existence, the flood of support that came in from the people who knew him online proved it anything but.