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The Independent UK
The Independent UK
Lifestyle
Louise Lazell

‘A parallel life’: The medical mistake that saw a woman watch her entire family fight incurable brain disease

Huntington’s Disease Association/PA Real Life

A retired teacher who built a “perfect life” with her soul mate says their love gives her the strength to carry on as she faces the heartbreaking reality that her husband, daughter and son have inherited an incurable and degenerative brain disease.

Before Alison Holland, 64, married fellow teacher Bert Holland, 69, in 1982, he told her parents that he could trace the genetic condition Huntington’s disease (HD) back to his great grandmother’s generation, but that his father had escaped it, meaning he and any children he had would be fine.

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