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The Guardian - US
The Guardian - US
Politics
Mike Mariani with photographs by Jason Henry

A catalogue of losses: what chronic fatigue syndrome took away from my life

Mike Mariani at his home in Roseville, California. The author was diagnosed with chronic fatigue syndrome
Mike Mariani at his home in Roseville, California. The author was diagnosed with chronic fatigue syndrome Photograph: Jason Henry/The Guardian

On Friday, 14 December 2012, I would experience the sudden onset of an illness that, looking back almost a decade later, bears a powerful resemblance to the narratives of those suffering from long Covid.

That night, I had plans to meet a woman I was seeing. At the time, I was working as an adjunct English professor at a local college in Westchester, New York, commuting over the George Washington Bridge from my fourth-floor walkup in Hoboken, New Jersey, and trying to persuade distracted 19-year-olds to appreciate the black comedy and cryptic comeuppances of Flannery O’Connor. After walking back to my apartment from the gym, I showered and sprayed on cologne. But before I could leave, a wave of weakness and disorientation crashed over me. My balance became wobbly, and my stomach lurched forward and back. I staggered through my apartment as if it was the cabin of a boat heaving and pitching in a storm.

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