The Catch-22 of the American healthcare system is that it’s home to some of the world’s most advanced medical treatments, yet many of them remain financially out of reach for the people who need them most. New York couple Millie Grennan and Joe Somers have endured one heartbreaking setback after another. Just when they thought they had found a glimmer of hope, they discovered it might still be beyond their reach.
Their 5-year-old daughter, Anna Somers, was recently diagnosed with a rare genetic disorder called Metachromatic Leukodystrophy (MLD). The progressive neurometabolic disease gradually destroys the protective sheath surrounding nerves in the brain and spinal cord. Once symptoms begin, there is currently no way to reverse the damage, meaning Anna’s condition is expected to be terminal.
