Walk into Shelley Herniman’s home and you’ll immediately be hit by the intense smell of chocolate. When Easter comes around Shelley’s son Noah gets to work on donating as many eggs as he can muster for various charities, but for Noah this year is very different.
The 16-year-old who suffers with neurofibromatosis, meaning tumours grow on his nerve tissues, was diagnosed with an inoperable benign tumour at the core of his brain last year following the cancellation of his routine MRI scans. He is now undergoing intense chemotherapy. You can read an article on Noah's diagnosis here.
Despite all of this, Shelley and the Chepstow community where they live are continuously amazed by Noah who this year isn’t only donating thousands of eggs to charity again, but also is kickstarting plans for his own charity to help families like his at the toughest time of their lives. “He wants to help families with severely ill children have a place to go and get away from it all,” Shelley explained proudly of Noah’s efforts to try to find three retreats for families affected by traumatic diagnoses.
